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Someone will come along

A portrait photo of Carly Findlay

I look different to most people. It makes it hard to find a partner to love. It can make me sad. I have had boyfriends in the past. They have not had a problem with my disability. But some people I meet find my disability difficult to accept. I think everyone deserves to be in a loving relationship. I know that the man of my dreams will take the time to get to know the real me.

Posted by: Carly Findlay, on 20/04/10

A woman who is leaning her head on a man's shoulder

Everyone deserves to be loved

Lots of people say to me that I will find a boyfriend soon. You've just got to give it time, they say. Or someone will come along and love you for the person you really are.

This all may be true. It’s also very kind. But in reality, it's difficult for some people I meet to get over my appearance.

I'm not saying that about everyone I meet. The majority of people I meet do look past my appearance. I've got many wonderful friends and colleagues. But finding a partner can be hard. And it can make me sad.

I'm not feeling sorry for myself. I simply want to write about the challenge of having a chronic illness or disability and finding love.

Sharing my life with someone

It's not too bad being single. I don't have to share or compromise. But sometimes I just want to share my life with someone. Someone to go to the movies with. Someone to cook dinner for. Someone to love. Someone to make me feel loved.

It's not like I do much about “fixing” my singledom. I don't look at online dating sites anymore. I don’t go to nightclubs on a Saturday night. I am more likely to be at home drinking Moscato in my pyjamas and watching Love Actually. And I don't belong to Rotary or a chess club. Nope, I'm not putting myself out there.

I have had boyfriends in the past. Four in fact. These have all been fine about my skin condition. Even the yucky everyday stuff. One boy marvelled at an ant carrying a piece of my skin across the hardwood floor. He was so fascinated by this that he watched it for five minutes. He also told me that one day my skin cells won't have anything to renew anymore and that I'll spontaneously combust. Sometimes he was so fine about my skin that it became more about my skin than me. But he meant well. 

Not what they expected

The time I did online dating reminded me of being in a catalogue. I was always the girl whose profile looked good on screen, but wasn't what they expected in real life.

After one particular meeting, an email exchange went like this:

Him: You never told me you were going to be that red.

Me: What should I have done? Sent you a paint swatch sheet and made note of the colours ‘Fire Hydrant Red’ for bad days, and ‘Chipolata Sausage’ for good days?

I also once tried a “singles meet”. But when meeting one boy, I didn't manage to get much past hello. The exchange went something like this:

Him: So you're going to, like, be red, like forever?

Me: Like, yep...

Cue awkwardness and me reaching for the nearest drink.

Waiting for love

I think some people don’t expect someone like me to have a boyfriend. Once I changed my Facebook relationship status. It said Carly is no longer single. Lots of friends commented they “liked” it. Once person commented it’s about time. The comment might have been good natured. But I wonder whether she thought I’ve been waiting for love all of my life.

Most of my loves have been unrequited. Crushes can be fun for a while. But moves are made (or not) and then I am left feeling a little bit devastated. It is hard to love someone more than they love you. Some of the positive letdowns have been flattering. But they still don’t give me hope for finding requited love. Examples include:

Sigh.

How long will it take

I know these boys looked past my appearance. They are good people. But I wonder how long it will take for me to admit my feelings for someone and get a reply like Yes, I'd love to get to know you better.

I'm not a jealous person. But sometimes I do wish my life was a bit more like others. I wish I didn't have to worry about my skin getting in the way of doing things like going out or wearing certain clothes. There have been times where I have seen people with disabilities in relationships and wondered why I can’t be like them. To be loved unconditionally. I feel bad for thinking this. Everyone deserves to be in a loving relationship.

I think I'll know when I meet the man of my dreams. He would have taken the time to get to know me under my exterior.


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Readers comments (18)

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Posted by: Abbiek, Victoria 20/04/2010 at 09:38am

Wow carly! Way to share. =) I havnt been too worried about finding a bf until recently. I have never had one. Ur article makes so much sense to me, but for different reasons.others can't beleave if never had a guy. Is that supposed to make me feel better? I think I know exactly y I havnt and it can't change. Thanks 4 sharing. Now I no it's not just me. =)

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Posted by: Phillip Vincent, Hobart 20/04/2010 at 04:59pm

Carly, I too have wanted to be in a relationship and have never been fortunate in doing so. I'm 55 and have cerebral palsey since birth. My right arm isn't fully developed and Iwalk with an unsteady gait. Although I have many female friends I have never been in a relationship. I tried internet dating but all it did was cost me money for no retuirn. Just recently, I've decided to enjoy being single, because that is what I am at the moment. If I meet someone great if not that's ok. Since taking this approach, I am alot happier and enjoy what I have. I was at a funeral resterday of a close friend whose husband died after a 2 1/2 month battle with cancer. I know that many of her single female friends at the wake yesterday have the same deep longing that you have. They are succesfull abled body women, yet they feel 'disabled' because ther's no one special in their lives. Hang in there!

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Posted by: Anne-Marie, 20/04/2010 at 05:37pm

Carly, thank you for sharing with us, and don't give up hope for finding the love of your life - Ijust know it will happen for you! All comes to she who waits! I was 35 years old when I met my husband; I had almost given up on finding anyone by then. We have been married now for 15 years and couldn't be happier. It will happen for you, too, because you deserve it. You have a beautiful soul! The colour of your skin doesn't matter, to those who DO matter.

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Posted by: Sharlene 'Shaz' Sturk, 20/04/2010 at 06:52pm

hey Carly, beautifully written as always. Thanks for sharing your story, as i am sure many of us relate to you in a similar way. Cheers Shaz :)

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Posted by: Adrienne, 20/04/2010 at 09:28pm

Carly: ss always, I am in awe of your honesty and openness in sharing your thoughts and experiences in such a beautifully worded fashion. Having been blessed with meeting my husband while we were so so young, I can't even imagine the difficulties associated with dating and the search for "the one", particularly with a chronic illness and one that is immediately noticed on meeting someone. The man who looks past that to see you for who you are, is a very lucky man indeed. xx Adrienne

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Posted by: Maria , Melbourne 21/04/2010 at 01:07pm

Hi Carly. I wanted to thank you for sharing your story with honesty and integrity. Your belief in your own value and uniqueness is obvious in all your write. I have been married, had boyfriends and how am single. I have two beautiful boys, a new house to move into, and a pretty full on job. Yet I constantly have to remind myself it is far far better to be alone than with the wrong person, or with someone who just does not get you. Many women, including me, 'settle' for someone because of societies expectations without considering the effect it will have on their self esteem and emotional/mental/spiritual growth. I'm not saying being single doesn't suck at times. But it is about being true to yourself. with out without that special 'someone'. You are awesome all by yourself.

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Posted by: Gary Barling, Warrnambool 21/04/2010 at 06:27pm

It is refreshing to see a frank article about online dating for people with a disability that is not just informative and does not just go through all the options, while blithely ignoring the reality of the situation -- the difficulty of finding someone willing to have a relationship with someone with a disability.

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Posted by: Kip, 21/04/2010 at 09:42pm

Thank you for your honestly and sharing your story with us. I was single (not meeting anyone at all) a long, long time before I met my wife. It got to a stage where I rented alone because I ran out of single friends which I could flat with. Hang in there as you are really special.

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Posted by: Kati Nelson, Mobile, AL 27/04/2010 at 03:27am

GREAT article!!!

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Posted by: Rob, Albury 28/04/2010 at 08:44am

Carly you have a real talent in communication. This is a real gift in itself. Thankyou for sharing your honest thoughts.This single article can help so many people in its own right. I'm sure life's joys will come to you.

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Posted by: Kristen, Darwin 02/05/2010 at 06:01pm

Wow, powerful, honest, courageous words Carly. You have so much to share for those with and without disabilities. Keep on telling your story, as so many people gain so much from hearing it.

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Posted by: Verity Drewettsen, Perth, WA 05/05/2010 at 10:42am

I have jumped from relationship to relationship my whole life, starting with almost co-dependent best-friend relationships in primary school. I have been with my husband for the last almost 8 years, which is almost a third of my lifetime. I have spent so little time on my own that I don't really know who I am or what I want, and am now having to hurt my husband by pushing him away in order to get to know myself. You seem like you are really in touch with yourself and what you want and what you believe, this is a rare achievement for anyone and I commend you. Anyone who has cut short or failed to begin a relationship with you because of your unusual (and awesome) appearance is likely not the sort of person you want to base your life around anyway (but I'm sure you have long since decided this!). Good luck and enjoy being awesome.

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Posted by: Kate Giles, Highton 23/05/2010 at 08:13am

Carly!What a gift you have for writing. Have you ever thought of putting you efforts into writing a book about your life, your challenges and how you overcome them? I believe it would be a best seller. I also have a disability. After two bad relationships which left me on my own I vowed never again! During this time, I discovered who I was and what I wanted with the following questions Who I want to be? What I want to have? What I want to do? What I want to give? And for the first time in my life, it was all about me! I began to love my single status. I could do what I pleased and when it pleased me and I had the most wonderful sense of belonging - to myself. Then in my late 40's along came a wonderful man who loved me for me regardless of my disability. I kept him at arms length for quite some time as I was reluctant to give up my single status. We have been married for 15 years this year and life couldn't be better. I think the most important thing in life is to be yourself and to love who you are. Then wondrful things happen. I will be looking out for more of your writings. Don't let such talent go to waste. Take care!

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Posted by: Pauline, Melbourne 20/06/2010 at 09:38pm

Hi Carly, and everyone else. I agree with everyone. when it is right and real, at least you will know you can trust the guy implicitly. He will love and accept your skin no matter what condition it is in at any given moment. I went through the same issues as a kid, and I went to Yooralla, where many of the boys were scared of my skin, we were great BUDDIES, but never anything else. So it goes to show that everyone is capable of prejudice. Don't think that all disabled people will accept either. Don't automatically think that you would be better off with another disabled person, because it is not about what we have or don't have, it comes down to our personalities, and compassion for the human race. I had 3 huge crushes at school, on 2 Aboriginal guys and my best Pool buddy who was from Papua New Guinea, and they were all scared of my skin. I loved them all dearly. it was not until after I hooked up with my husband when i was 19 years of age, that I reconnected with one of the guys, and things were a bit different, but it was too late I was already taken. When I was at the sheltered workshop, the guys used to tease my husband and ask if it was like making love to sandpaper. Not very pleasant, but I put it out of my mind, because I still had Danny. He really blasted them for saying that. As they say Patience is a Virtue!!! I think you are 20 years younger than me Carly, so you have heaps of time yet. Psuline

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Posted by: Davidh, Carrum 03/07/2010 at 01:53pm

Carly, I wish you so much of the best in life! I have Asperger's Syndrome, and PTSD. The Asperger's makes it hard to strike up a relationship. I have also lost my teeth due to a childhood illness. I can't wear dentures as I have a horrible gag reflex. I have always been self-conscious of my appearance. After a lifetime of disappointments I have now found someone special. So the foregoing is all a roundabout way of asking you not to give up. Yes, learn from what you endure, but fight to the last breath to stay away from condemning yourself to the hell that is total cynicism. I was there once, and I don't recommend it! You are a beautiful lady, and anyone who does not see that is not good enough for you. It is they who are missing out! Take care!

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Posted by: elf, melb 17/01/2011 at 11:10am

thanks for a great, brave piece carly.

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Posted by: Terrina Weatherspoon, Maryland 01/08/2011 at 10:54pm

I laughed when I read the Moscato part. I'm not single...and I still spend most days, in my PJs, watching law and order and drinking Moscato. Some say 'sipping' but I say 'drinking' because...it's just so good. Life is a plethora of greener grass.

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Posted by: Annie, 02/10/2011 at 04:58pm

Quoted: Phillip Vincent

Carly, I too have wanted to be in a relationship and have never been fortunate in doing so. I'm 55 and have cerebral palsey since birth. My right arm isn't fully developed and Iwalk with an unsteady gait. Although I have many female friends I have never been in a relationship.…

Im wondering if you were the person I met on feb 14th 2011 @ The Wooden Boat Festival, the only ref i have is that youre name was Phil@ yr chair had the name Phils Ferrarie

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